Wednesday, November 24, 2010

Please pray for Lucia - a beautiful baby girl!

I have known Lucia's mother,

Kh. Ramia

for a good few years now through various
Orthodox events in Ottawa.

She married and is now a wonderful priest's wife!

Lucia, her beautiful daughter, is very ill.

She is now 4 months old and was born with

Trisomy 18.

Ramia explains what Trisomy 18 is in her first post:

Trisomy 18 is a pretty rare genetic condition where an extra piece of genetic material is found on the 18th chromosome.

It's not hereditary, but just one of those things that happens "randomly."

I say that because I don't really believe it's coincidence, but that the Lord chose us for her.

If you read anything about it (it's also called Edward's Syndrome),

it will tell you that most children with this diagnosis don't make it to birth

and the ones that do, very very rarely make it past their first year.

So Lucia is a little miracle -- maybe a BIG miracle actually,

since I think all children are miracles.

*

Lucia has been really struggling this week

and currently has a collapsed lung

not to mention her heart that has a large hole in it.

*

Please join me in prayer for Lucia

and subscribe to Kh. Ramia's blog

and let her know you are praying for her

very beautiful and strong

baby girl,

Lucia.

2 comments:

Matushka Anna said...

Elizabeth, I shared this on my blog. I also embedded a video about a family with a Trisomy 18 child. Worth the watch.

Elizabeth @ The Garden Window said...

I will be praying for this precious little one, and for you too ! Take good care of yourself !