I have known Lucia's mother,
It's not hereditary, but just one of those things that happens "randomly."
I say that because I don't really believe it's coincidence, but that the Lord chose us for her.
If you read anything about it (it's also called Edward's Syndrome),
it will tell you that most children with this diagnosis don't make it to birth
and the ones that do, very very rarely make it past their first year.
So Lucia is a little miracle -- maybe a BIG miracle actually,
since I think all children are miracles.
and currently has a collapsed lung
not to mention her heart that has a large hole in it.
Please join me in prayer for Lucia
and subscribe to Kh. Ramia's blog
and let her know you are praying for her
very beautiful and strong