Tuesday, January 31, 2012
Joy at the end of January
January is almost done
Saturday, January 28, 2012
Thought we could all use a taste of summer
Thursday, January 26, 2012
Prayers Requested...
Latest Facebook update from Noah's Mom Kate:
VERY bad labs today. Liver numbers are 50 times higher than they should be (they are measuring the enzymes put off by the death of liver tissue) and rocketing up fast. They were 1,100 a week ago and are 1,800 as of today. BUN is up only slightly (bad kidney number) but Noah always has a lower than normal BUN so having it elevated is significant. Bili is up a bit and there are lots of other labs that are off.
Worse of all, the MRSA is still growing out in his urine after almost 2 weeks of antibiotics, AND he is growing out another bacteria as well now. Yes, he GOT a new bladder infection while on antibiotics. Both bugs are obviously resistant to the Zyvox he is on.
The swelling continues to worsen. He doesn't look like the same child. He is still as sweet as ever, though, and he just doesn't complain. He did get teary and choked up yesterday and quietly told me that Mary Faith gets to go to birthday parties and to friends houses and he can't go to them anymore. I loved on him and told reminded him that he's been to lots of birthday parties, but he wasn't buying it - he was sad that he can't go anymore. He also pointed out that he can't play hide and seek anymore because it is too hard to walk.
I don't know how much more my heart can handle.
She is getting better but is still very tired and has some pain.
Short Term Contract
Much to my surprise I just got word
that I have a short term contract for
1.5 months
and it is only a 5 minute walk from my home.
The contract may continue after March
but it is yet to be determined.
I start God willing February 16th.
Have lots to do to get ready...
Tuesday, January 24, 2012
St. John of Kronstadt
In all your works, either at home or at the place of your service, do not forget that all your strength, your light and your success are in Christ and His Cross; therefore, do not fail to call upon the Lord before beginning any work, saying: Jesus, help me! Jesus, enlighten me! Thus your heart will be supported and warmed by lively faith and hope in Christ, for His is the power and glory unto ages of ages.
St. John of Kronstadt
Monday, January 23, 2012
Noah's Foundation
Friday, January 13, 2012
Noah is very sick - please pray
We are right back where we were three weeks ago today. Noah's fever has continued to climb and isn't responding to fever meds (tylenol and ibuprofen alternating every 4 hours). His fever was 104.9 the last two times we checked.
He now has some fluid in his right lung, which is where the fluid build up started last time. The difference is that last time, we gave lasix which eventually worked to pull the fluid off. He's been on lasix ever since then, and this time he's getting the fluid in spite of the lasix. I just spoke to his infusion pharmacist and he said that the other good choices for diuretics are not available IV. Unless they can find something IV that will work on this fluid, it could continue to fill his lungs.
He is making urine, but it is very dark - butterscotch colored. He is retching a LOT. He's insisting on sleeping sitting up - I've managed to put the head of his bed back just enough so that he isn't falling forward, but with every tiny adjustment back he opens his eyes and shakes his head "no." It probably helps him breathe better to be upright so we're only barely reclining him.
Any touch or movement makes him start retching again, so I don't even feel like I can climb into bed and snuggle with him. I slept on an inflatable mattress by his side all night - using the word "slept" very loosely of course.
Please go here to send Kate a word of comfort during this time.
Thursday, January 12, 2012
Prayers for those in need
Monday, January 09, 2012
Cleo
Friday, January 06, 2012
Holy Supper
Did a simple version of the Holy Supper.
Borscht, Perogies, Bread, Fruits.
The bread I saved from my Oma's
Panahkyda.
Today liturgically is her birthday;
as well as in actuality my Grandpa's birthday;
I talked to my Grandma today
as I try to always do to remember my
Grandfather;
my Grandma always told him he was born on the
12th day of Christmas,
Epiphany as they know it....
The borscht turned out really well!
Did it a simple way as I did not have
a lot of time.
1 can beets with juice
1 can northern white beans
2 very big carrots chopped up small
3 large potatoes chopped up small
half of a larger can of tomato sauce
sauteed until caramelized onion with lots of margarine
added three or so cloves of garlic half way through
and some ground sea salt and pepper
chopped up and added lots of dill at the end.
Thursday, January 05, 2012
Noah needs our prayers
Latest update on Noah
from his Mom Kate Estes via FB:
Nurse just came to draw Noah's labs. NO blood return from either lumen! :-( In other words, a clot or fibrin sheath is blocking his central line. Waiting to hear from the doctor. PLEASE pray.
Cleo Care in early January 2012
Monday, January 02, 2012
January's Beginning - Peace, Loss and Prayer Requests
I found out that my Uncle, one of my Oma's sons,
fell on New Years Eve
and broke his pelvis.
Lord have mercy.
He is still in hospital and they can't do surgery
and there will have to be some rehab for him.
Please I ask your prayers.
One of my close friends just lost her Grandmother.
Sunday, January 01, 2012
New Year
As much as I had wished to have my house
clean for New Years
I was too sick to manage getting the whole house
prepared.
I am slowly getting better from the bad
chest cold I have been having
and was able to go to my friend's New Years Eve
Dinner party which was really nice.
I am hoping to get my house cleaned tomorrow
and that I finally will be well enough to do so.
I love my strand of white lights
that a dear friend gave me.
Friday, December 30, 2011
A Week Before Christmas...
Thursday, December 29, 2011
Updates
Day at the Monastery
It was so wonderful to be at
the monastery.
So beautiful.
Beautiful day,
my favourite weather - sunny, cold, snow on the ground,
so good to see the sisters there.
Beginning of 35
Wednesday, December 28, 2011
End of 34
Tomorrow I am Lord willing
going to the Greek monastery for the day.
I can't think of a better way to
spend my birthday than this.
I've been sick with a bad chest cold
for a good while;
I really hope for the strength to go tomorrow.
I had a great evening and dinner with good friends
tonight,
a lovely last night to being 34.
Tuesday, December 27, 2011
Latest on Noah
Monday, December 26, 2011
Prayers for this evening
Quiet and Remembering
I had begun fasting on the new calendar
for Christmas
so I could celebrate with friends in Ottawa
since I am not able to be with my family.
We have a nice dinner together.
I got to hold my godson.
Sunday, December 25, 2011
Noah - Fighting and Struggling
Saturday, December 24, 2011
Christmas Eve, Part 2
Noah woke up today
and was sitting up in bed,
his mother Kate related to us today via FB.
Thanking God for this mercy.
It is still a very hard situation...
I called my MI Aunt,
my Mom's oldest sister,
since I had missed calling her for her birthday
and today is/would of been/was my Oma's
103 birthday.
So we are all thinking of my Oma a lot.
Christmas Eve - December 24, 2011
(I say this because she is still alive in heaven).
Friday, December 23, 2011
Continued Prayers Needed
Noah is very gravely sick. He is a little better than he was earlier -
this afternoon both lungs were filling with fluid and he was not
responding to lasix - was barely peeing at all, in fact. A second dose
of lasix opened the floodgates and his lungs are much better, but
we've been cautioned that this not reason to get our hopes up too
much. This could go either way right now. He could recover or he could
have only a day or two - and anything in between. We've been
surrounded and blessed by the presence of people we love quietly
streaming in and out of the house to pray and just to sit. Perhaps the
greatest blessing of the day is that this afternoon Noah surprised us
all by waking up enough to open his present from Mommy and Daddy and
his present from his brother David. It took all he had, but he did it.
Thank you all for your continued prayers.
Noah - desperate shape
Noah is sicker. He has more edema (swelling) and now has fluid in his lungs. He's vomiting and appears to be in pain. He is doing a little "barking" with each breath because his vocal cords are apparently starting to swell. We've just now jumped his pain meds up quite a bit, and phenergan, ativan, and lasix are coming. (The first two are for the nausea and the lasix should help him pee off some of this fluid.) We can and will get oxygen delivered if needed. The hospice nurse is here now and Dr. B will be coming over at some point. Dr. B is trying hard (please pray) to find a way to get him blood and/or platelets here locally - if Noah needs to be transfused (and he will soon at this rate), we can't drag him an hour and a half to Greenville to do so. We have a fairly large regional hospital a few minutes away, but they've refused to transfuse Noah even when he was healthy - they say his "needs are too overwhelming." I can't stand the thought of losing him if blood could help him get over this crisis, so please pray that we can work this out. He really can't be woken or roused at this point - may open his eyes if he vomits or retches, and has nodded his head in response to questions a few times, but then is immediately back out. ANYONE local who wants to come sit in the living room and pray is MORE than welcome - just come right in - you don't need to call or knock.
Sights Seen
Outside of the NAC (National Arts Centre)
... there is always music playing
by this piano man
(speakers above not pictured)...
Entering the beautiful part of Ottawa...
I live about a 15 to 20 minute walk from this...
My first real library job
was about a mile down the street from here...
and was part of my falling in love with Ottawa...
The Chateau Laurier.
Beautifully kept up and very good food
and high tea.
Also quite costly so only a place I visit to look
at their historical photographs;
years ago when I had a good job and did not take a vacation
I went there with a friend who came to visit me
for high tea.
It was really lovely.
One of the hallways there...
Picture taken from an enclosed crosswalk
looking towards the Parliament buildings,
the Chateau being in the right hand corner...